This is my little guy’s second year of attending the school district’s preschool program. I’ve been amazed at his progress. He’s extremely independent. He puts away his own backpack like all the other kids. He uses his “writing bird” when it’s time to write. His drawings are phenomenal and just yesterday we discovered he could get his OWN water out of the water fountain. Now I’m trying really hard to ignore all the icky germs that he was exposed to because OH DEAR LORD HE DID IT HIMSELF!!!!I remember when he was first born being so upset because I was afraid he would not get to experience what other kids normally do. So this blog really is for those parents who are new to Arthrogryposis (or any other special needs)… I know some of you are struggling because your child may not walk yet or may not be able to crawl; and some of you may be pregnant carrying a child with special needs.
Please do not be discouraged. I know I was when my son was born. I assumed he would not be able to do some of the many things we all take for granted. Well here I am five years later and goodness was I wrong. Not only is he doing the aforementioned, he can also walk up steps that measure 9” high, he even hides under the bed to keep from getting in trouble. For those of you who don’t really know my son, yes his uppers are affected.
Give them the independence to learn on their own, to figure things out and you will be awed. It’s easy to do for our children, because to our thinking they can’t. But here’s what I’ve learned: THEY CAN. We as parents just need to be strong enough to allow them to learn on their own and struggle to adapt. And if you allow that, you’ll be amazed at what your extra special child will teach you, and you’ll see for yourself that there are no limits to what can be accomplished.
3 comments:
You're awesome Rosalinda!
Tracy
wow so beautiful.
Hi, I just wanted to say hello to you and thank you for sharing this information. My nephew, Easton, who is now only 3 months old yesterday was recently diagnosed with this condition. Both upper and lower extemities. We were told yesterday by his doctors at the Shriners hospital that there are no guarantees that he will ever walk. Before this we had never even heard the words Arthogryposis or Amyoplasia. Ive read blogs, posts, articles,watched videos, etc. and I must say...these children are ABSOLUTLY AMAZING! You're right by saying that what they face are things we take for granted everyday. God doesnt give us the people we want, he gives us the people we need and I thank him everyday for this blessing hes given us. This beautiful child.
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